FYI

The day started early. Two units of blood transfused today. I watched Jethenros yellowish pallor turn to normal within minutes after the infusion began.  It was amazing how quickly it affected his color tone. The favored, prayer warrior nurse was off today.

I am so grateful to my two special girls that cleaned the house while I was gone.

Most posts... are written by mom...

Activity!

Relaxing while getting a blood transfusion

What mom did while getting the transfusion

We were also blessed today~with a visit from a very special nurse who stops to visit us any time he sees us in the unit. Today he took part of his lunch break to pray silently~bowing his head over Jethenro.  He has shed tears of sadness with us, and rejoiced with us along this journey~ and  always encourages us and challenges us to deepen our walk with God!

Sibling Companionship

She walks with him to keep him company while he listens to her study out loud.  They both benefit.

Peaceful Days

Jethenro has received chemo 4 days this week. He will have 4 more days next week. We will not see the affects for 14-21 days. His defenses can and will drop quickly and unexpectedly.  That is when he becomes susceptible to any and every germ he is exposed to. The rest of the family becomes more careful, and the house gets cleaned more thoroughly. It may ward off complications...at least we hope...

But in the meantime we celebrate the good days.

Sabbath music~ the first time singing w/ family pianist in months

Piano~Violin

It warmed this mothers heart to know Jethenro could still sit down at the piano and play music with his sisters! It as been a long time.

His guitar waits for him at its place on the wall~waiting for the day when his fingers no longer tingle ~from  the side affects of chemo

Answered Prayers and Olive Garden

We are praising God for answered prayers today! Jethenro had an appointment with the Infectious Disease doctor today and we finally got the pathology report from the nodule in his lung and.... there is absolutely no fungus/mold growing!! We are so very grateful and thankful for your prayers in this matter!! 

On another note... Jethenro has had a pretty good week. He got a chemo drug on Friday but the medication he received doesnt have a lot of side effects other than bone pain and it doesnt cause his blood counts to drop significantly which means he still has some defenses. This evening the whole family was home so we took the opportunity to have a family evening and head to Olive Garden. This is the first time we have been out together as a family in over 3 months! It was soo much fun just being able to sit there, eating, laughing and having a wonderful time.

Monday he starts another intense round of chemo. He goes to the hospital for one of the meds and will be there until he is cleared to go home. Pray that he will clear quickly so he doesnt have to spend the night there. Then Tuesday-Thursday he has to go to the clinical everyday. He gets Friday, Sat, Sunday off and then is back to the clinical Mon-Thurs. 2 tough weeks ahead of us but we know that He is always there :)

Awareness Month

                  September happens to be Childhood Cancer Awareness month.

It just so happens that we have a child with cancer.

This is the sign we saw in our clinic today as our son received his treatment....

We celebrate his good days!

Please pray that he quits losing weight...he doesn't have it to lose! But every time hw has been in the hospital, he has lost some. and is hard to gain it back. He doesn't have much appetite right now either...