Wednesday, August 29, 2012

The Reality

Reality set in today as we sat in the exam room at the clinic.
Jethenro has been feeling good, and being gone for awhile refreshed our souls

~chemo days faded into the back of our minds~

until today when he was accessed for the Vincristine at the clinic. 
He looks great, he acts fine, but he is neutropenic~that is the target, and expected.  It doesn't show, but there is an awareness that he is more susceptible to getting sick.

The good news is that he has gained muscle and weight.  

Snapshot

Concentration

Thursday, August 23, 2012

Vacation Time

We took our first family vacation since diagnosis.  It was 14 days, 5600 miles, and 4 time zones.
Made wonderful memories with friends and family.  




team supreme~still active
Tho there were late nights/early mornings~Jethenro stayed well through all the changes. PTL!

Thursday, August 02, 2012

Clinic Visit

Best position to be in after an lp!
Jethenro was in the clinic this week for chemo. 
 They hit a nerve in his spine, and that has been a little painful for him.  He continues to have a positive attitude about  the discomfort he experiences from lumbar punctures.  It affects him differently each time he has one.  His iv chemo requires 5 days of oral steroids and that affects the way he feels also.  
I am thankful that it wears off and he gets to feel 'normal and well' more often now that he is into maintenance phase.