half way~with a look back

before diagnosis~so pale

A memorable trip~ just before diagnosis

Anointing Service just after diagnosis

Ambulance ride to the airport

Qualifies for wish to be granted

attending a Christmas party 2011

laporotamy incision

19 units of blood~13 units of platelets over 9 monthes

needle biopsy to determine possible infection

welts from toxicity

watching a movie together

supreme team sibs

our second home

newest family member

walking is always easier with friends around 

hair had gotten so thin~he chose to take it all off

and dad followed for support

first road trip

needs something to do...

build a computer! all parts were donated.

fun in the sun

making music together

We are looking at being about half way through Jethenro's treatment for ALL. Looking back I see so many blessings through all the bumps and curve balls that have been handed my son. He continues to be an inspiration to those around him. Thought I would post some reminiscing pictures to remind us of how far he has come

Thank you all for your prayers and support

  

Finally~an update~

Last week blood counts showed  an ANC of 1008.  Back onto oral chemo he went.  Because Jethenro has had so many chemo holds from low blood counts even though he is on 50-85%   in his dosages for chemo, the ONC team is altering his prophylactic antibiotic.  He begins a once a month regimen of an inhaled antibiotic that many leukemia patients use. He will have to go to the hospital as an outpatient for this 'nebulizer' treatment of 'pentam'.
He still has a little bit of congestion in the mornings, but  seems to have squashed the flu bug that landed him in the hospital.

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~Working on an electronics project~

a hobby he has picked up since building his own computer

Moms Point of View

Jethenro is not completely well yet~his eyes display it.  He has a blood check this week.  Please pray he recovers fully. 

Nope~Can't Hide~

Somehow the government finds you when you 'come of age'~wherever you are~ 

And they don't observe your medical records first...

Yep~ He has a draft number

Sleep!

The fever lasted 24 hours.  The doc discharged him Friday afternoon.~Got home just before sundown.  The whole family was in bed before 10pm.  Some of the family did not get up until 10:30am...it was wonderful to get sleep with no interruptions. Jethenro is still not feeling good, but at least there is no fever. He is on meds, so we hope that  takes its intended effect.

His blood counts are low.  Too low.  The doc says the oral chemo needs to be adjusted. There will be an in-clinic appointment this week for blood check and consult. He will have been off oral chemo for two weeks

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UPDATE:

Today Jethenro has been feeling better, so the meds are working...