Thursday, July 4, 2014~1:46pm

Last update:

Jethenro responded to the antibiotics just long enough to be taken off of life support, but within 24 hours his neutropnic body had developed another infection and he was headed back into septic shock. He did not want to be intubated again, and neither did the rest of us, so surrounded by his family Jethenro was given comfort measures.  We believe he was hemorrhaging internally because he was losing platelets  almost faster than they could be infused. His eyes had become blood shot, His kidneys and liver had been damaged, and there were probably other organs affected.
Yet this did not stop him from smiling, cracking a few jokes and thinking of others. The last 48 plus hours of his life he was afraid to go to sleep. He knew he had 'died' and that was the reason he had been intubated. He was terrified to go through that experience again.

July 1~ Day 24

Much has happened since the last post.  Jethenro went into septic shock on Thursday night June 26, 19 days after being admitted to the hospital.   He was just weaned from all life support yesterday. He is still in very critical condition.  We almost lost him 3 times that  first night. Each day there is progress, and we are so very grateful for miracles. He was transferred from the ONC unit to the PICU unit to the adult ICU  in a matter of hours that first night. The PICU unit does not have an intensivest present at night, and they were having to call the doctors for every medicine needed to get the orders before getting it from the pharmacy.  They were  not able to work fast enough. This sent my nurse husband into action.  He called a Dr. friend who was on site within half an hour. The first miracle. When he asked for things, the PICU staff did not have what he needed to stabilize a young adult. He got on the phone to transfer him to adult icu.  He was told that there were no beds. Jethenro happens to have an aunt that was present in the room that works in the icu. She told the doc to hold on, she would go to the icu floor and speak to the charge nurse.  She came back within 10 minutes with a room number.  The second miracle.  The transfer was made, and our son was put on life support before it was  too late..