Jethenro's Journey

Learning a new game on one of the better days.

Chemo was postponed until Friday, but Jethenro saw Doc B today.  Doc wanted to verify that all was well, as he had seen me  melt down at the...

The colors seem a little faded due to low quality camera, however I think it is evident that they are orange and blue.  Siblings bonded toge...

It was the night before D~day, and we all thought Jethenro would get some extra sleep. But for various reasons, he was awake quite often. T...

Today was D~Day! We are home!! Biopsy so far negative! Chemo resumes Monday.

The morning after the procedure, Jethenro developed pain that got increasingly worse until he needed strong pain medication. The x-ray sho...

My mind is on overload learning all the medications my son has been on or is taking or will take...it is difficult to know he has to go thro...

I am getting ready to head to the hospital this morning.  The fever has continued off and on through last evening.  Jethenros defenses are c...

Monday~ Chemo day. At the clinic for 3 hours Tuesday~Feelin' pretty good- visited cousins for about an hour celebrating a birthday ...

That is what dad pulled out of Jetties drain when he was trying to figure out why the water wasnt draining. Guess we now know where most of ...

It was a blessed beginning to Sabbath as Jethenro felt strong enough to attend Vespers.  It warmed my heart to see his friends surround him....

There are times that Jethenros porta cath is left accessed for a few days at a time.  Our almost graduate nurse has invented a way to keep i...

stopped by for a visit

Sweet potato bread...a gift greatly appreciated Lasagna Rice and green bean casserole Homemade pizza Since I shared the k...

Jethenro had another 'chemo at the clinic' day.  When he told the nurse what happened yesterday, they gave him an injection that eas...

Three of us headed to the clinic with Jethenro to receive a chemo injection. Everything went well. Donald needed to talk with the nurse pr...

It was wonderful to spend a few days at home before the next phase of chemo started. There was laughter and then serious talk. It was good t...

We are home. Ahh...It feels good to be here. A good night sleep without interruption is planned for all in this house tonight! Someone dropp...

We are waiting around to discover if this is discharge day, or if it will have to wait until tomorrow.  I told the nurse that we owned the r...

It was not surprising that one evening as my husband walks in the door after work, that I said, "Welcome Home!"  I looked around ...

 Something to talk about! The surgeon had to look...and left the staples in to prove she had been there.. 21 staples  The surgeon drained...

My tears flow freely as I write this. My mommy heart is broken for my son. What we thought was an allergic reaction to a protein drink has ...

Acute Lymphocytic Leukemia Thanks to a special friend who posted this on her blog.  She is taking the same journey with her 4 year old s...

...this is what happens!

We received a privileged  phone call this evening from the Dr.  Jethenro is in remission   However...that only determines what comes next....

Good news!! Jethenro is holding his platelet count! They were 133,000 today, still on the low end but much, much better then the last couple...

Are becoming routine most evenings... when Jethenro has enough energy.

  The best position for a game of Uno  We have been watching Jethenro loose his thick head of hair this week .  Because it is not coming ou...

We vote appetite! We hope it stays that way. We can handle gathering up the hair...  

Thursday: Roshi, Marci, Don, and Jethenro left for the hospital at 7am. They were admitted to day surgery and Jethenro had his portacath ins...

We awoke in the  morning  thinking we had the morning to work around the home. But  we received a phone call to get to the pediatric surgeon...