Hair? Or Appetite?

We vote appetite!

We hope it stays that way.
We can handle gathering up the hair...

 

Busy Days

Thursday: Roshi, Marci, Don, and Jethenro left for the hospital at 7am. They were admitted to day surgery and Jethenro had his portacath inserted. (It was an actual surgery with general anesthesia etc.)

They came home around 11 and Jethenro rested some before eating lunch. At 1:30 we all headed out to the oncology center. Apparently they were running behind schedule so Jethenro didnt get in to start his treatments until almost 3. He had his bone marrow aspiration done and then his IV chemo. The clinic where Jethenro is getting his treatments has two associate doctors and a nurse practitioner (Dr. A, Dr. B, and NP). Jethenro saw Dr. A today and because this doctor is much more cautious doing LPs in patients with thrombocytopenia, He decided that Jethenro needed more platelet and blood transfusions before he could get his lumbar puncture (chemo administered through the spine). So after the clinic we headed to the hospital to get him all registered for an early morning admittance to the PICU for the transfusions and the platelets Friday. We didnt get home until 6:30pm. Jethenro didnt do much the rest of the evening. He was pretty worn out from the days activities.

Friday: Marci, Don, and Jethenro were out the door and headed to the hospital by 8:30. He was admitted to the PICU and over the course of the day got a unit of platelets, his lumbar puncture (LP), and a unit of blood. They arrived home about 5:30pm. Jethenro isnt as tired today as he was yesterday but it has still been another long day. He is starting to experience more side affects of chemo, such as joint pain and headaches. 

We will be getting the results of the bone marrow biopsy  next week. Please pray that there will be no more blast cells.

Thank you for your prayers!

A Long Day

We awoke in the  morning  thinking we had the morning to work around the home. But  we received a phone call to get to the pediatric surgeons office ASAP for a consult that had been originally scheduled for 2 pm.
This consult  was in preparation for a porta cath insertion.

a temporary tube insertion that can be used for either drawing blood or delivering meds

By 10:00 a.m. we were in the physicians office.

The doc sent us straight from his office to the hospital to register and do the preliminary work for a 7:30 a.m. insert in the morning. Jethenro's blood work showed that he would need a platelet transfusion. It took awhile for the Dr.s to coordinate the order, and to get the transfusion delivered.

The nurse  ordered a lunch for Jethenro, so he had something to eat. Marci snacked, but Don waited until we arrived home.

By 5:30 p.m. were on our way home...

A long day indeed.

mom