Check Day

Today Jethenro had his blood checked.  His ANC is 450. Defenses are low.  This means he is on a chemo hold until next week  and  check his blood again then.  That is fine with me! That means no toxic chemo for a whole week! But it also means that he might be  fighting some virus or have a greater chance of getting sick.  

The Refreshing Weekend

A picture from the  weekend camping trip..  There were 20+ people that went hiking, tubing down the river, played volleyball, relaxed by the campfire and ate food cooked on the fire.  There was vespers, church and sundown worships. Jethenro was challenged, but he did enter into all the activities. 

Another 1st

Heading off on a weekend camping trip~with caution~!

Snapshot

The smile of success

Yes, it is a computer that he built and it works!

Brought tears to my eyes

Special music at church~the first time in over a year

IT is HERE!

Anybody know what this is all about?  

{Thank you to those who made this project possible~}

 It has all finally arrived just at the right time~after his final test.

Stay tuned for more information.

Snapshot

Caught in the act

Another Clinic Day

Yesterday Jethenro went into the clinic for a blood check, iv chemo and lumbar puncture. The procedures all went as predicted.  His ANC is 540~a little too low for my liking, but within expected range, so no change in oral chemo dosages.  However, the clinic failed to send in the prescription, or give me a copy in hand to hand carry to the pharmacy of  a particular med he is supposed to take alongside the iv chemo. I even stood around and waited for the Rx~but was told it would be done electronically.  Many phone calls between us,the pharmacy, and clinic have continued since leaving the clinic building yesterday.  Jethenro has missed two doses already. It looks like the Rx will finally be ready this afternoon~  Not  pleased at all  that we had to be so aggressive. 

Jethenro has been tired but attribute it to a busy weekend. 

Snapshot

Dont they look scrumptious? 

Jettie has almost been craving salads these last couple of weeks. Due to having a couple of new nurses in the family he was off fresh fruits/veggies while he was severely neutropenic or at risk of being so. The ONC team never told us he couldnt have such food but  Jettie's paranoid sisters recited well what was learned in nursing school ;) Once he reached maintenance levels the salads came back in full force. As far as I remember Jettie never had a great taste for salads. Oh, he ate them but they werent his favorite. Now... it's a different story. Salads are on the menu everyday. He just cant get enough :)